I have felt so many intense emotions following the recent story of Bethany, who I wrote about last week, and several other stories that have come to light in the British press. I know I’m not alone with these feelings. Gillian Mead is a Mother who is one of thousands, whose cry for help rips… Continue reading How can we as parents effect permanent change in the space that is mental health care, specifically, Pathological Demand Avoidance Syndrome?
This is the best and most simple visual that I have seen for an overview of PDA supporting strategies.
It’s a beautiful spring bank holiday weekend here in New Zealand, my adopted country of 13 years. It reminds me of my childhood with the cherry blossoms and the sound of birdsong, though, half way round the world from my homeland, the sounds are distinctly different. The smell of cut grass remains the same… Continue reading A Day In the Life of…
This week a story has hit the world news about a teenager called Bethany who is being ‘imprisoned’ in a private health care facility in the UK because services have catastrophically failed her and her family. Bethany is diagnosed with PDA. When I first came across the story, I felt I was unable to hear… Continue reading Bethany. A story that should never have to be told.
My darling husband was born in 1967. When he was born, the ‘theory’ of the origins of autism was that it was caused by parents not loving their children enough and the term ‘refrigerator parents’ was coined. (This is where we all pause and then gasp). 51 years is not a long time in the… Continue reading The importance of standing up for PDA.
I think of our life as a big ocean. I’m a drop in the ocean, bobbing around taking it all in. I’m part of the ocean, not separate from it, but my experience in the ocean is uniquely mine. My family and my friends are drops in the ocean too and we bob around in… Continue reading Bobbing around in the waves of the ocean.
More and more families are discovering PDA as an explanation to their loved ones behaviors. Our Global support page members count now sits at over 3,000 and there are many other groups such as individual countries or specific sectors like education, self healing, or peaceful parenting. There are adult groups and regional groups. All… Continue reading Welcome to PDA and a reflection of our PDA journey so far.